Conversations about goals of care are difficult for many clinicians. To successfully lead these conversations, we must be comfortable with content surrounding progressive illness and prognosis. Many clinicians think the first and only duty is to discuss code status, ventilators, and ICU needs. What many clinicians are missing is that our first job is to understand who our patients are as people and what matters most to them. When we start with a checkbox—“Full code or DNR?”—we get checkbox answers. When we start with the human being, we get stories, values, and real guidance for the medical decisions ahead.
Before any big medical discussion, it helps to pause and get to know the patient as a person. This does not require a long life history review. To know our patients requires curiosity, respect, and an unhurried presence. Research on serious illness communication supported by NIH has shown that when clinicians create space for patients to share their goals, hopes, and fears, it strengthens relationships and leads to care that is better aligned with patients’ priorities. A few intentional minutes asking about family roles, meaningful activities, sources of strength, and worries about the future gather the key aspects that reveal the true person. This revelation is the start of a person-centered plan—a plan which encompasses connection, independence, comfort, faith, family, fears, and hopes. In serious and end-of-life illness, centering the person in this way can help prevent care that conflicts with their preferences, including unwanted aggressive interventions and missed opportunities for comfort and dignity.
Knowing intimate details regarding our patients lets us explore what matters most to them. Serious illness conversations are distinct from routine medical encounters because they focus on values, goals, wishes, hopes, and worries. Simple questions like “When you think about the future, what are you hoping for?” and “What are you most worried about?” appear in several NIH-sponsored serious illness conversation guides and toolkits. These questions invite patients to name the priorities that will later guide medical choices: being comfortable, staying at home, reaching a milestone, preserving independence, or avoiding burdens on loved ones. Studies show that simply making room for these discussions, without immediately pushing for decisions, can reduce distress and better prepare patients and families for the path ahead.
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